Mission Statement

Through an educational and informational support network, committed to the enhancement of the lives of all persons affected by Ehlers-Danlos Syndrome.


* increase public awareness of Ehlers-Danlos Syndrome.

* provide accurate, timely information about the condition to affected patients, their families and health care personnel.

* encourage the establishments of EDS self-help groups in communities across Canada.

Since our beginning in November of 1996, a great deal has been accomplished. We have maintained contact with many areas of the medical community across Canada. We have created an on-line listserv community which strives to strengthen the bond with many who suffer from this syndrome. We have established several provincial support networks which allow for a regional source of support for our members and links to needed medical care and representation. We have established a source of support and link via a quarterly newsletter and have launched an important EDS Learning CD-ROM.

We have so much more to do, and with your help we can achieve it all!